chronic illness, disability, aging, wheelchair, coping What I Learn About Living from My Chronic Illness - Working with a Disability
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Blog Title: What I Learn About Living From My Chronic Illness by Shelley Peterman Schwarz
Chronic illness changes every aspect of your life. In my blog, I reflect on my 30+ year journey living with primary progressive multiple sclerosis (MS). I share thoughts, insights, and lessons learned that hopefully will help you or someone you know. - Shelley
By Shelley Peterman Schwarz on Thursday, February 02, 2012

 

Deb, my right hand and cohort in crime, left last week and will be gone for 2 months.  Deb's multiple chemical sensitivities become a serious problem in winter because, living in the Mid West, we have to close up our houses and turn on our furnaces. Deb's going to try living in Mexico and see how she feels. We both hope the sunshine and warm temperatures will improve health.


I think I'm being very mature about Deb being gone, especially because it will be quite a change for me...
By Shelley Peterman Schwarz on Wednesday, November 16, 2011
Yes! It is possible! You can work - even if you have a chronic illness or disability.  Explore your options through vocation services (VR) which are available to everyone, no matter where you live or what your level of disability. Watch and I'll explain...
By Shelley Peterman Schwarz on Tuesday, July 05, 2011

I'm horizontal again and am spending my time in bed trying to learn more about “pressure ulcers.” I tried to make an appointment with my dermatologist but she’s on an indefinite medical leave, so I decided to wait to until next week when I see my internist for my annual physical. Hopefully, he’ll be able to identify whether or not I have a “pressure ulcer” or something else.

 

My assistant, Deborah was supposed to be here this morning but she was up until 2 AM proofreading, Home Accessibility: 300 Tips for Making Life Easier book. So when she called me this morning – exhausted - I told her...

By Shelley Peterman Schwarz on Friday, July 01, 2011
I just submitted my book manuscript for Home Accessibility: 300 Tips for Making Life Easier, affordable solutions for making your home safer and more accessible, and I'm ECSTATIC! Deborah, my assistant, did an amazing job the project and her laser beam focus and planning made it possible for us to meet our deadline. Thank you Deborah!...
By Shelley Peterman Schwarz on Saturday, June 18, 2011

I’m still thinking about the feedback that I received from my keynote presentation to the vocational services professionals. I know that I'm very lucky to have had all the opportunities that I’ve had over the 30+ years living with my diagnosis of primary progressive multiple sclerosis. Had it not been for the Division of Vocational Rehabilitation (DVR) in Wisconsin, I would never have been able to...

By Shelley Peterman Schwarz on Friday, June 17, 2011

In May, I gave the closing keynote at a conference of Wisconsin vocational rehabilitation counselors and other professionals who help people with disabilities reach their employment goals. Today, I received the feedback summary from the meeting planner.  I loved reading the attendees words.

 

Of course, I read, with special interest, the ...

By Shelley Peterman Schwarz on Saturday, January 22, 2011

So much of who we are is tied up in what we do. When I became disabled due to the efffects of multiple sclerosis, I had to retire as a teacher of the Deaf. It was one of the saddest days of my life for two reasons. 1) I loved my job and, 2) along with losing my job, I lost a part of me. After all, who was I now that I wasn't employed?

 

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